Today, October 6th, is world cerebral palsy day. I wouldn't have even known this day existed prior to having Cyrus, but I do, and it does. It got me to thinking about our CP journey thus far, and the world of disability as a whole. As always, this is from my perspective as a parent. … Continue reading World Cerebral Palsy Day
Its hard to believe, but we are one month (and change) post g-tube surgery. I have to be completely honest, deciding to go forward with the surgery was one of the most difficult decisions I've ever had to make, and up until the last moment I still wasn't sure that we were making the right … Continue reading Ain’t nothin’ but a g-tube, baby!
I've been told time and time again by Cyrus's therapists that I'm very good at just "going with the flow", and I have a "well, this is where we are so let's just deal with it" mindset. I think they're right. But I'm only like that 99% of the time. My reality is that I … Continue reading My 1%
Medical bias. Or rather, bias in general. To be honest I was pretty unaware of it during our first months with Cyrus. I was so scared and worried and looking for answers that I really wasn't able to fully be aware of the bias that occurred towards Cyrus due to his injury and subsequently his … Continue reading Here’s your box, enjoy your stay.
Its something that comes back to me often. Before my own mother went to the hospital for her cancer treatment I went to her house for a visit. As I stood in the kitchen she turned to me and asked "how are all of your friends doing? How are all the babies?". I looked at … Continue reading Being a good mom makes me a terrible friend.
I think it starts the same for every parent, whether planned or not. Two lines. Two small lines that alter your entire future for the rest of eternity. It was what I had hoped for, tried so hard for, failed at time and time again. After a miscarriage (or in my case, a few) those … Continue reading This wasn’t in the birth plan.
My view from here “Everyone goes through pain…whether it be emotional or physical. Whether or not you let that consume you, is what makes you a sufferer of pain.” -Dartania Emery, adult with CP